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21 Comments
Dienogest/ Germany, for free
Such a beautiful couple, from the outside in❤😊
Long ago, I was given danazol
Drug monopoly in the US, no room for other manufacturers to compete or get clearance
Oh my goodness. You have the MOST painful female problem in the world. Good thing you're asking the world. For me, a total hysterectomy was my only relief. That, and percodan once a month.
I was diagnosed with endometriosis after the birth of my first child. A ob/gyn that specialized in Fertility Treatment; diagnosed me. He did surgery and removed; all that he saw by laprascope. He prayed over every patient. The solution we had was premature menopause or hysterectomy. Eventually hysterectomy was necessary; hemorrhage, necessitated that outcome.
I'm Australian. I was diagnosed with late stage 3 endometriosis and had surgery to remove it all. After surgery, I wasn't given any medications at all because our primary goal was to get pregnant (after years of infertility). I took vitamins etc. but my Drs wanted me to get back to a normal cycle naturally. Plan was we'd give it 9 months of trying and then make a call from there if I wasn't pregnant. Amazingly, I got pregnant naturally 6 months post surgery and delivered a healthy baby boy last year. If getting pregnant hadn't been my primary goal, I would have been prescrib Ryeqo.
Maybe south of the border.
Its likely a commercial reason in the US. Unfortunately care of women has been universally under addressed in america.
Big pharmaceutical companies control America's health care system. Follow the money trail.
The gold standard in the US is for your doctor to brush you off then demand $100 for the ten minutes of their time. Or $1000 if you're uninsured.
I live in the US and the only treatment my doctor offered was laparoscopy (already did but pain returned within months) or lupron depot (I have done two different 6 month treatments it did help). The only other option they offered was hysterectomy.
Estrogen makes it worse!
Doctors in tbe US pretty much don’t care if you have. Deal with it!
Gold Standard in California (US): Go to Standford 4 times for excision – then get a full hysterectomy. Now on hormone replacement and exhausted again ALL the time.
If you could help other couples it would be great like this YouTube couple Cole and Charisma. They have the same diagnosis and gave up..
Look into a compounding pharamcy to get this med without estrogen. Your dr could totally prescribe it that way!
some U.S. endometriosis specialists regularly help their patients order Visanne (2 mg dienogest) from Canadian pharmacies. It requires a valid prescription, and you pay out-of-pocket, but it is a common "legal loophole" for personal use
I take dinogest and it really changed my quality of life.
The fda will not approve anything that actually improves quality of life or cures illnesses. That's not profitable. They want to keep us sick & miserable & masking our issues with more meds forever.
Probably the manufacturing company may have deemed it not financially convenient to go through the FDA approval process, as there were USA alternatives which would have been cheaper, as they were not imported.